The Albinism Association of Nigeria (AAN) has called on the federal government and key stakeholders, to urgently integrate skin screening and treatment into the National Health Insurance Scheme (NHIS), in a bid to tackle the high rate of skin cancer among persons with albinism.
President of AAN, Dr. Bisi Bamishe, made the appeal during her welcome address at the International Albinism Awareness Day (IAAD) 2025 celebration in Abuja.
This year’s event with the theme: “Demanding our rights: Protect our skin, preserve our lives,” focuses on the urgent need to address health, education, and social inclusion issues affecting persons with albinism in Nigeria.
Dr. Bamishe described the theme as a “powerful call for urgent action,” emphasizing that adding skin care to the NHIS coverage will help save lives and improve access to essential healthcare services.
“One of the most pressing challenges is the harsh environmental conditions which have led to rising cases of skin cancer among our members.
“Many cannot afford treatment, and as a result, we are losing lives daily,” she said.
She highlighted that albinism-related health complications, particularly skin cancer have disproportionately affected the community.
Dr. Bamishe urged government agencies, civil society, and the media to support inclusive health initiatives and implement the national albinism policy on education to address the learning disadvantages caused by visual impairments in students with albinism.
“May this year’s celebration renew our shared commitment to upholding the rights and dignity of persons with albinism in Nigeria,” Bamishe said, calling for bolder advocacy and increased investments in health, education, and social integration.
In his remarks, Chairman of association’s Board of Trustees, Prof. Sam Amadi, praised the association’s structural growth and national recognition.
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He stressed the need for unity within the community to drive policy advocacy and systemic change.
“When we are united, we can articulate our needs upwards. Our strength should lie in our unity of purpose,” Amadi stated.
Mr. Kaura Wakili, Chairman of the FCT chapter of the Joint National Association of Persons with Disabilities (JONAPWD), applauded persons with albinism for their resilience and pledged continued support in the fight for equitable healthcare, education, and employment opportunities.
“We must continue to push for better healthcare, equal opportunities, and protection from all forms of discrimination,” Wakili said.
Another stakeholder, Mr. Afam Kasim, advised persons with albinism to take personal responsibility by using sunscreen and avoiding excessive exposure to sunlight.
“If the government is supporting us, we must also support ourselves. If we keep exposing our skin to the sun, we will have issues,” he cautioned.
The event attracted stakeholders from across Nigeria’s public and private sectors, as well as AAN representatives from different states.
It also featured educational campaigns on skin protection and calls for policy reforms to safeguard the rights of persons with albinism.